Medical Misinformation

In the past year or so I’ve been around a lot of other parents whose kids have significant medical needs. I’ve learned a lot from them, and I hope I’ve done my part to share what I’ve learned with others. The value of this kind of relationship can’t be described in words. Over time you learn who is trustworthy and who isn’t. Until then, be sure to run suggestions by your child’s doctor. It’s unlikely anyone out there would intentionally try to harm your child, but there’s an overwhelming amount of misinformation circulating online.

Anyone can create a website. Literally anyone, and at no cost. There are a lot of great resources out there, but some are written by people unqualified to make the claims they’re making. Even if something is a valuable piece of information, there are frequently times where what works for one child may harm another. When people search for information on the internet, some of it inevitably comes from these feeder sites which claim to be an authority on their topic. This information is then shared by mouth as well as through reputable aggregation sites.

Most of the time the information simply provides no benefit. Unfortunately, it does occasionally cause harm. Some of these sites don’t include warnings such as, “contact your doctor,” or “go to the emergency room if you’re experiencing..,” because the person making the site doesn’t have the medical background and healthcare experience to know these statements are necessary. I’ve had multiple mothers come on in a support group and ask if they should take their kid to the ER. Why? Because it’s, “a long drive,” and they don’t want to make a unnecessary trip. Who told them the trip might be unnecessary? Some website they found through a search engine. Is it necessary? Every person whose opinion I respect in that group thought so.

Aside from erroneous resources, there are also parents that present themselves as experts on an entire subject because they’re an expert on their kid. These parents are frequently wonderfully supportive and valuable resources, but they don’t have your child’s medical history in front of them when they provide advice. What’s the harm? Well, they’re adamant about their opinion and convincing in their arguments because they truly believe they’re correct. However, they can only make a judgement based on what you give them. Does a kid with a fever need to go to the ER? “It depends, probably not.” Does a kid with a fever and a TPN line need to go to the ER? “Why haven’t you left yet?” The point I’m trying to make is, even experts can only work with what they know, and as complex as special needs kids can be medically it’s impossible to communicate all the important information over the internet.

Please, for the health of your child, be careful where you get your medical advice. It’s wonderful to have so many supportive mothers out there willing to help. There are also many legitimate websites with truly invaluable information. Let your medical team help you sift through these resources and find the ones you can trust.


2 responses

  1. Very Well put.
    I have many people ask me about their kids health, like I am an expert just because my kid is special needs. I am an expert in my child, you should be an expert in yours.
    If you feel something is wrong, then get it checked by a medical professional. There is no such thing as a wasted trip to the ER or the doctor, even if it just sets your mind at ease.

    Liked by 1 person

Leave a Reply

Fill in your details below or click an icon to log in: Logo

You are commenting using your account. Log Out /  Change )

Google+ photo

You are commenting using your Google+ account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s

A Momma's View

My thoughts about homeschooling, health and fitness, being an expat, kids and just life in general. My personal Lifestyle Blog!


World's Greatest Blogger


Random observations about writing, photography, travel, and life

Daddy Coping in Style

A dad coping with fatherhood, stylishly.

The Thrifty Gourmand

Eat Well. Cook Often. Live Sustainably.


A daily selection of the best content published on WordPress, collected for you by humans who love to read.

The Daddy Blitz

Thank you for visiting my Blog! Please take a few moments to leave a comment and to sign my Guestbook. If I'm not already following you, message your Blog address to me.


Live in the moment with a grateful heart

Loving Them

Even when they drive me crazy.


Psychology to Motivate | Inspire | Uplift


My with MS

Karen Lee Kleis

Fiction, Poetry, Nonfiction, Photography and Photo Art

Art by Rob Goldstein

There is no common truth, but there are facts.

A Thomas Point of View

My high horse journalistic point of view


Sharing my experiences with all life's experiments!

Being Margaret

A lighthearted look at life on any given day

%d bloggers like this: