I’m a mother of a child with Noonan Syndrome-Like Disorder (SHOC2). He’s my first, so I don’t really have a good frame of reference for what’s, “normal.” I never took much interest in babies until I had my own. It just didn’t seem interesting. They had their Mommies, and they didn’t need me. Sometimes I wish I had paid a little more attention!
My child is the first in the family to need significant medical care, and the first my family has cared for with a feeding tube. Many of my sisters’ children only go in for well visits. I’ve put my career aside for now to give my son my full support. A lot of people told me I’ll regret it one day. A lot of people are wrong. This is where I belong right now.
If you would like to read up on how he’s doing, the most recent update is, “Big Changes this Spring.”
Press kit available upon request.