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What Can I Do to Help?

What Can I Do to Help?

This is the number one question we hear from family members and friends. It doesn’t always come out explicitly and sometimes it’s not even clear. I can see it in their eyes. They want to help and they have no idea how. They feel powerless and it doesn’t feel good. It’s uncomfortable, confusing, and frustrating.

It makes it even more difficult that we don’t always have an answer. Feeding our son isn’t as straightforward as it is for most kids. If someone does watch our son for us we need to be back before it’s time for him to eat. Some aren’t comfortable watching him at all because they don’t understand what it means to have a feeding tube or how to handle an emergency.

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Cleaning to Sanitize vs. Cleaning for Appearance

I had the time and energy to clean the house today. While I was shuffling through and bouncing from room to room, I realized something. I don’t clean the same way I did before my son was born. I used to go from room to room top to bottom and do everything at once. One room had to be completely cleaned before I moved to the next. It’s like night and day.

Now I clean the biggest mess first. The toddler had a massive vomit episode in the kitchen. I guess it’s time to vacuum and mop the hardwood floor. We’ve had a vomiting episode in the bedroom. Time to vacuum and wash the bedroom carpet. Every once in a while I’ll get a chance to take care of something that isn’t related to our son. For example, today I cleaned the bathroom! It would be way too embarrassing to admit how long it’s been since that happened. I can’t remember the last time I was able to enjoy a completely clean house.

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