Support groups are one of the most helpful things I’ve found to keep my sanity. There’s nothing quite like sitting down and talking through your problems with people that deal with the same issues you do each and every day. I vaguely remember what it was like before I joined them, but mostly its a blur. I knew nothing about tube feeding when they placed my son’s nasal gastric (NG) tube in the hospital. If not for our home care nurse coming once a week I would’ve been completely and utterly lost.
A few people have told me I appear to be handling things really well and have my life together. I thought about why, and it’s because of my support network I’m able to stay calm and keep going. Without them my sanity would scatter to the wind within a matter of days.