Several days into Davy’s 9 day hospital stay at the age of 2 months, I realized that I knew nothing.  I felt ignored by the doctors and confused by the terminology.  I constantly thought of questions to ask, but forgot by the time a doctor made it into the room.  I cried frequently, unable to figure out how to deal with the fact that there was something wrong with my baby boy.  I wanted to know why this was happening.

When we were discharged, it only got worse.  In desperation, I bought a plain spiral bound notebook, the kind I used to use in grade school, to try to keep track of all the information and questions I had for Davy’s many medical concerns.  I stumbled along and eventually came up with a coping system for navigating my new life as a medical mom…

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