Several days into Davy’s 9 day hospital stay at the age of 2 months, I realized that I knew nothing. I felt ignored by the doctors and confused by the terminology. I constantly thought of questions to ask, but forgot by the time a doctor made it into the room. I cried frequently, unable to figure out how to deal with the fact that there was something wrong with my baby boy. I wanted to know why this was happening.
When we were discharged, it only got worse. In desperation, I bought a plain spiral bound notebook, the kind I used to use in grade school, to try to keep track of all the information and questions I had for Davy’s many medical concerns. I stumbled along and eventually came up with a coping system for navigating my new life as a medical mom…
