Advertisements

Update – More Testing Needed

We went to the hematologist yesterday. They need to run more testing. According to the tests ran two weeks ago, our son does clot moderately slower than expected. They’re not sure why and the additional tests will hopefully provide some insight. Depending on the cause it may be easy to manage. I didn’t ask questions about what we’d need to do if it wasn’t easy. I don’t want to know unless I need to know.

It’s been tough for me because I wanted to believe I was wrong. I wanted with all my heart to believe I was paranoid and I had been nagging nurses to hold the gauze a little longer and check before they put the bandaid on after removing an IV for no reason. I wasn’t wrong. I’ve known for a long time he had this issue and while I chided the nurses to be cautious, I still denied to myself that there was a real problem.

I keep telling myself, “it’s good to know.” Realistically, my heart is hurting. My baby already has Noonan’s Syndrome which was difficult to diagnose because it was a mutation and not inherited. I don’t want another diagnosis. I want to focus on helping him have as normal a life as possible considering the obstacles he’s already facing.

Advertisements

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s

A Momma's View

My thoughts about homeschooling, health and fitness, being an expat, kids and just life in general. My personal Lifestyle Blog!

PenneyVanderbilt

World's Greatest Blogger

HeideBlog

Random observations about writing, photography, travel, and life

Daddy Coping in Style

A dad coping with fatherhood, stylishly.

thekitchensgarden

farming, gardens, cows, goats, chickens, food, organic, sustainable, photography,

The Thrifty Gourmand

Eat Well. Cook Often. Live Sustainably.

Discover

A daily selection of the best content published on WordPress, collected for you by humans who love to read.

The Daddy Blitz

Thank you for visiting my Blog! Please take a few moments to leave a comment and to sign my Guestbook. If I'm not already following you, message your Blog address to me.

thehappylife101

Live in the moment with a grateful heart

Loving Them

Even when they drive me crazy.

MakeItUltra™

Psychology to Motivate | Inspire | Uplift

MSnubutterflies

My Walk..........Living With MS

Karen Lee Kleis

Fiction, Poetry, Nonfiction, Photography and Photo Art

Art by Rob Goldstein

There is no common truth

A Thomas Point of View

My high horse journalistic point of view

lifexperimentblog

Sharing my experiences with all life's experiments!

Being Margaret

A lighthearted look at life on any given day

Dream Big, Dream Often

A Blog to Inspire and Challenge You!

HarsH ReaLiTy

A Good Blog is Hard to Find

%d bloggers like this: