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A Change of Approach

The vision of this site has always been to help parents of special needs or medically complex children thrive. The devil is in the details, as they say. This came down to three main pillars.

  1. Provide important and timely information
  2. Share our struggles and progress, good news and bad
  3. Help parents find products that can make their lives easier

The first two are primarily driven by writing and they’ve been going well based on reader feedback. The third has been significantly more difficult. Setting up a retail store was not as easy and straightforward as it sounded. I made the attempt but getting a wide range of products and offering them at competitive prices while also taking care of our son wasn’t practical.

My most recent attempt to satisfy this last piece of my vision for the site was to partner with Amazon. I’m happy to report it seems to be working well and I hope it continues to work well into the future. There are a wide variety of products, I don’t need to stock the items, and Amazon handles the shipping. That said, it’s still our store. We choose what to list in the store. The products in the store have been recommended by other parents who have used them or we have used them ourselves with positive results.

If you’d like to recommend a product there’s a page for that.

If you’d like to take a look at the products in our store there’s a page for that too!

If you have any feedback please feel free to share it with us. We feel that to meet our overall vision we must be successful in all three pillars.

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Medical Identification (Medical ID)

I highly recommend anyone with a child who has complex medical issues or special needs purchase a basic medical ID. There are a lot of different kinds available. There are adjustable ones with velcro and watch bands. For the fashion forward there are adorable combinations of pink and blue bracelets. You can choose to engrave the details on a plate. Some have a pocket where there’s a little piece of paper you write on. Whatever method you choose, children with special needs and complex medical issues NEED a Medical ID.

Why? You might be incapacitated by the same thing that injured your child or your child might not be with you. Then…

  1. Drug allergies will not be discovered until the drug is administered.
  2. If your child has an implanted device, such as a shunt, no one will know to check right away if it’s been damaged.
  3. They may offer your child who silently aspirates food or drink.

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Medically Fragile Door Sign by Love For Everly

Medically Fragile Door Sign by Love For Everly

It was brought to my attention there is a beautiful hanging sign for only $12.00 at Love for Everly’s Etsy Shop. No printing is required, and the proceeds go toward the cause detailed below. I know a large portion of you don’t actually want to have something professionally printed. This is a nice alternative. As you’ll see when you visit, there are options for a baby boy, baby girl, young boy, young girl, and multiple children.


My daughter, Everly Marie Hopkins, was born with Trisomy 18, a complex and mostly fatal genetic condition. This chromosomal disorder affected every part of her body making her a prime candidate for infection, illness and early death. Any small sickness carried by someone else could potentially be life-threatening for her tiny body. In a desire to protect my daughter, I placed a specially designed sign on our front door alerting and/or reminding potential visitors of her fragility. I hunted high and low for a sign such as this but to no avail and thus had to commission a custom sign be made. Thus, came the inspiration for our sign…to politely but stylishly share how careful we must be around our medically fragile babies and children. If someone you love or know has a condition that requires extra care and barriers at times (like cold and flu season), this sign is the perfect choice!

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Generously Donated Signs for Medically Fragile Children

Generously Donated Signs for Medically Fragile Children

In response to the recent flurry of discussion around how to keep our special needs children well, one of the moms in our support group graciously agreed to donate printable signs for medically fragile children. I asked for a name to credit, and the creator generously declined.

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