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There is Skilled Labor in the Medical Mom Community

There is a large untapped labor pool that – if someone can figure out how to access it – would provide a significant amount of skilled labor to the marketplace. This set of people has a broad range of skills from software development to professional writing. Some individuals in this mysterious category excel at art, music, or storytelling. The one thing they have in common – a child with a medical condition whose care would cost more than they could earn working.

I recommend employers take a look at this community of people and sincerely evaluate whether or not they can put them to work. They will be part-time employees unless paid more than childcare costs for their child’s unique needs. Some of them may need to make enough, even part time, to replace what they get through state assistance in addition to funding their childcare needs. It won’t be easy or straightforward – but it’ll be worth it.

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H.R. 1270 – Restoring Access to Medication and Improving Health Savings Act of 2016

H.R. 1270 – Restoring Access to Medication and Improving Health Savings Act of 2016

This law is a new one working through Congress, and a lot of people haven’t heard about it yet. I want to bring it to your attention because it could save our family – and possibly yours too – a lot of money. The law proposes to modify the existing healthcare law, the Affordable Care Act, to allow the use of Health Savings Account (HSA) and Flexible Spending Account (FSA) funds for over the counter medications without a prescription.

How the Process Works Now

You can pay for over the counter medications with HSA and FSA funds now – but only if you have your doctor write you a prescription. To pay for your allergy medicine or headache medicine you need to go to the doctor every time you need more and have them write down on a prescription pad the medication is necessary. Then, you go to the pharmacy and have them “fill” the over the counter medication just like they would fill prescription medications.

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Noonan’s Syndrome and Heart Problems

Noonan’s Syndrome and Heart Problems

Sometimes children with Noonan’s Syndrome are born with heart problems or develop them early in life. Because of this and other unrelated concerns, we’ve monitored our son’s heart since before he was born. This past week I was thankful we did. It’s not otherwise apparent that one of his ventricles is growing at an unhealthy rate. We’re expecting a call from a surgeon any day now to place a catheter up through his leg to measure the pressures inside of his heart.

I’m told this sounds significantly scarier than it is. My husband knows at least one person who’s undergone this procedure multiple times. That’s not overly comforting when your two-year-old is the one going in. I’m terrified honestly. We’ve recently discovered he has Von Hildebrandt’s Type 1. If they need access to his vein, that’s clearly going to involve some bleeding. The medicine challenge they performed a few months ago didn’t last as long as it should have. While they’re not ruling it out – they want to try again after he turns three – that does mean he’ll need two different drugs to help him clot after the procedure is over.

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Medical Care for Your Pet

Medical Care for Your Pet

It’s not a fun topic, but it’s an important one. We’re all so busy rushing around trying to take care of our little ones and their vast array of different medical needs. It’s tough sometimes to stop and think about our other loved ones — our pets. Getting them to the vet once a year for their booster shots and a well-visit is essential to keep them healthy and catching any chronic health problems early on in their life.

For the most part, your pet’s well-visit will cover similar things that other family members’ visits include. They take a look at their eyes, ears, and ask about any health concerns. Just like when you take your children to the pediatrician your pet will get booster shots needed to maintain their immunity to a wide variety of illnesses that can be life-threatening to your pet. Some of these ailments may even be able to spread to the rest of the family.

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What Can a Service Dog Do?

What Can a Service Dog Do?

I’ll tell you right up front; the answer is almost anything. It’s important, however, to go through exactly what situations a service dog might be useful. After all, “everything” doesn’t tell you how a service dog could help you, it just says it can. I’m going to list out a few different situations and how service dogs can make a significant difference in overall quality of life. You don’t need to be deaf or blind to benefit from having one.

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ALMOST Time to Get Your Flu Shot – but Not Yet!

ALMOST Time to Get Your Flu Shot – but Not Yet!

It’s flu shot time again. The CDC has key facts on their website about the shot if you have any health-related questions. There are a few places you and your family can get their flu shots.

  1. Most pharmacies are offering them on site.
  2. Your child’s pediatrician may provide the shot through a nurse visit which I’ve found to be both faster and less traumatic for my son.
  3. The Dr.’s office is also an excellent way to get it if you’re already going in for something. They can just give you a dose while you’re there and have it over.

It does take a little while to provide protection so you’ll want to get your flu shot sooner rather than later. However, you may want to wait until at least October before getting the shot. It’s especially important to hang on a little longer if you’re over 65. See the NPR article for additional details.

Yes, it is Possible to Get Your Flu Shot Too Soon – NPR

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Feeding Problems and Speech Delay

Feeding Problems and Speech Delay

Our son has been trying to talk for a while now, and he tends to be reasonably understandable when he wants something. Every once in a while, he’ll even surprise you with a full comprehensible sentence — maybe once a month. It’s clear he understands complex thoughts and long sentences based on his response to instructions. So, what gives? Why is he not speaking clearly on a consistent basis?

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Why Every Circle of Friends Needs a Medical Mom

Why Every Circle of Friends Needs a Medical Mom

Medical Moms are awesome! Every circle of friends needs one. They’re reliable when it matters most and the time they spend with their friends means the entire world to them. Here are even more reasons why EVERY circle of friends needs a Medical Mom!

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Emergency Preparedness – Hurricanes

Emergency Preparedness – Hurricanes

Hurricane season is officially here with the arrival of Hurricane Hermine last night in Florida. I realized as I lay in bed trying to go to sleep that I had yet to do a post about the challenges unique to Hurricanes. I published a similar post about snow last winter if you’d like to check it out. Hurricanes, however, are a different beast. The challenges commonly presented include:

  1. Power outages
  2. High winds and structural damage
  3. Flooding

The number one thing to remember with a medically complex child or even an adult that needs assistance is to evacuate the moment you’re asked to do so. If you’re new to living in an area visited by Hurricanes, these are not just rough storms. They destroy large swaths of property. There will not be power, and you’re unlikely to have fresh water. If you insist on staying after the evacuation order you are taking your life and the life of your charge into your own hands.

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What Does Self-Care Mean to You?

What Does Self-Care Mean to You?

This is a sponsored post for the Self-Care Movement. I have been compensated through the Chronic Illness Bloggers network. All opinions remain my own and I was in no way influenced by the company.

Above all, as caregivers, we need to take care of our needs. To me, self-care means doing the things I need to do for myself that enable me to continue to perform well as a caregiver. Self-care includes things like showering, eating at least two to three meals per day, exercising daily, and getting enough sleep. It also means treating myself to coffee when I have a spare few minutes, having my hair cut, and taking care of my nails. Doing everything that gives me the energy required to recharge my batteries and make it through those long days.

When we first started struggling with our son’s medical difficulties, I thought it would be best to sacrifice my needs for his. Day after day I continued to do less for myself than I needed. Eventually, I was so tired I couldn’t even do basic math calculations in my head. Finally, my husband realized the desperate nature of the situation. He stepped in to make sure I got enough sleep and had time to eat at least once a day.

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