Yesterday we went to see, what we expect to be, our son’s last new specialist. It was an emotional day for me because this felt like our last chance for new ideas. We left empty handed. All we have left to do is implement his care plan, which is straight forward albeit time-consuming.
Have you ever had the feeling you’ve hit the end of a chapter? Today feels significantly different from yesterday. Yesterday our son’s care plan still had the potential to change. Today we know exactly what we need to do for at least the next six months. While his care takes up the majority of my day, it’s a relief to know the load isn’t going to get heavier even if it doesn’t get lighter.