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10 Signs You’re a Parent of a Tubie

Thought some of you moms (and dads) would enjoy this. Please share it with others that need a smile.

  1. Some sounds will wake you out of a dead sleep and will probably continue to do so for a long long time, if not the rest of your life. The high pitched beeping of a medical grade pump, for instance.
  2. When you have to give medication to a child without a feeding tube, or they have a belly full of gas. You won’t really wish they have a feeding tube, but you’ll think for at least a brief moment you would be able to help them a lot more if they did.
  3. The idea of dropping your child off at daycare is foreign to you. If you leave your child with anyone, they’ve gone through at least several days of training to make sure the caregiver isn’t going to cause an emergency room visit.
  4. You don’t wait more than an hour to be seen in the emergency room, because if it’s not something the doctor would be willing to call ahead for you can take care of it yourself at home.
  5. You already know what’s wrong with your child when you take them to the hospital, but the hospital is the only place that can do the things you need done fast enough to prevent your child from developing complications.
  6. It’s no longer surprising when someone implies you’re a bad parent. “Obvious,” solutions for your child’s complex medical problem seem to flow from everywhere. Clearly all of the therapists and specialists you’ve been seeing for years are incompetent and have no idea what they’re doing. They couldn’t have possibly suggested these, “obvious,” solutions when you first started seeing them. It’s not like your child’s medical professionals have experience with these types of problems or anything.
  7. You know immediately whether or not a doctor or resident has read your child’s chart as soon as they walk in the room. They’d look a lot more terrified if they had.
  8. If an elective admission has to be pushed from June to July you ask to be called if there are any cancellations in June or to take care of it in September.
  9. By the end of the year, you haven’t had to pay out of pocket for medical services for at least three months, and for some as many as eleven.
  10. People tell you they don’t think they could ever handle the things you’ve been through with your child’s medical problems. You look at them like they’re crazy, because you can’t imagine anyone doing anything differently. There’s way too much love in your heart for that little angel to let them suffer a minute more than necessary.
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6 responses

  1. I love it when doctors waste my time by asking me questions that have the answers in my son’s file. Then they hem and haw while they try to come up with something, most times something we’ve already tried and they’d know if they read the file. Now when I’m asked, my answer is “Did you read the file?”
    Also, #10 makes me sad when I’m told that they couldn’t do what I do. I think to myself hour sad it is that they don’t think they could live their child because it’s live that makes you not even give it a second thought. We live our kids and do what needs to be done.

    Liked by 1 person

    • I’m sorry #10 made you sad! I intended it to be warm and fuzzy.
      Dealing with doctors that are unprepared is a constant annoyance for me. Thankfully, I’ve only run into this situation in the hospital with residents or the ER doctor. I’m not sure what I would do if the situation repeated itself, but changing physicians comes to mind as something I would consider. I hope you don’t have to deal with it again. It’s really a waste of your time and theirs!
      Thank you for sharing!

      Like

  2. Gosh, I’m sorry that you ever receive negative comments when you are obviously dealing with something very challenging, both emotionally and physically. Lots of people have far too many opinions that they should keep to themselves in situations like this.

    Liked by 1 person

    • For the most part I think they mean well, which makes it extremely frustrating on both sides. For whatever reason, there seem to be people in the life of almost every parent I know struggling with a feeding tube that think if they had the child for a week the child would suddenly be eating.
      I wish I knew how to politely explain that there are therapists, a nutritionist and specialists all working together to help my son eat enough to sustain himself. The opinion of one parent that had a somewhat picky eater are not going to solve my son’s problem. The only thing I can seem to come up with is to thank them for the suggestion and move on with my life.
      If you tell them you already tried what they suggested, they just keep suggesting more things. If you tell them you don’t want advice they get offended. Accepting it graciously and continuing on is really the only practical solution. I think if I could change one thing about these situations (besides never being in them), it would be that they would allow me to change the topic of discussion. Even after I say thank you, many keep going.

      Liked by 1 person

      • I know that feeling, the fact that you’ve welcomed their advice, (in their minds!), means you obviously want them to continue with their wonderful and obviously so brilliant advice. I think I would struggle to remain polite! Maybe turn it round and offer them some advice, like, ‘that is wonderful advice, thank you for sharing it with me, I feel it is my duty to return the favour and tell you that that hair colour really washes you out!’ 😉 Then walk off while they take it in!

        Liked by 1 person

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