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Your Child Looks too Healthy to Have a Tube

First, thank you. Unfortunately, it’s not that simple. If only getting to a low side of normal weight automatically made my son want to eat and drink enough to sustain himself. That would make everything so much easier. There’s something I need to share with you while we’re on the topic.

My child is healthy because of the tube. If not for the tube, he would still be off the bottom end of the growth chart. For the first year of his life he gagged on anything put into his mouth besides formula (and sometimes that too), so he wouldn’t have been able to take any medication. We suspect its because of his medication he eats what he does. He has all the behavior symptoms of GERD (gastroesophageal reflux disease) when left untreated.

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Struggling to Thrive, Introduced on, The Green Study

Struggling to Thrive, Introduced on, The Green Study

Generally, I would never post twice on the same day. I am, however, extremely excited to share with you that I have been introduced on The Green Study for the first week of August! Please, check it out. There are two other blogs introduced alongside of mine. They’re definitely worth a look.

I swiped her header to make the post look nice. I hope she doesn’t mind!

The Importance of Personal Best

Special needs children are like runners. Runners are one of the best groups I know as far as understanding what, “personal best,” really means. I can’t count how many times I’ve watched someone come yelling and cheering with excitement for losing a race. You look at them like they’ve gone mad, until they explained they cut a whole minute off their time. Well then, that’s a big deal! Once they explain you all celebrate together, because you don’t have to be the best to be awesome. You just have to keep getting better. So, what’s my point?

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I Can Work!

I found out today that I can finally work! I’ve been asking and asking, and they kept telling me they didn’t have anything. They found something I can do! The hours are flexible and the work is independent, so I don’t have to worry about coordinating around anyone else’s schedule. I’m so happy I can’t describe it. This one small thing, just being able to put in 10-20 hours a week, has completely changed how I feel about my life.

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A Special Needs Mom’s Never Ending Battle with Feelings of Inadequacy

I spent the first twenty or so years of my life judging my worth by grades. After that, it was job title and salary. It wasn’t until almost thirty that my son was born and his medical difficulties turned everything I knew about how to measure myself upside down. Some Moms compete over who has the sickest child, but that’s just not me. I’m perfectly happy when my son needs less medical intervention than someone else’s. I want him to be able to blend into a crowd and let something define him besides his health. At the end of the day, I’m left with no way to define myself good or bad. It leaves me feeling completely out of my depth. For every new thing I learn, there’s ten more things I need to work on.

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